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Members! Simple Directions to your eForum
Click on LOGIN, in the sidebar to the left, and enter Username (first initial/last name) and password. Press enter. Next click on eFORUMS in the sidebar to the left.
(Whenever asked "Email Notification Enabled?" click on YES)
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Consumer Questions Regarding Hospice Care
The National Hospice Foundation has created a list of questions that will help you evaluate and select a hospice program. Click on the "Consumer Questions..." headline above.
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Access and Values Project Report Completed!
"Access to Hospice Care: Expanding Boundaries, Overcoming Barriers," a report drawn from a three year study of the values that drive and hinder hospice access was published as a Special Supplement accompanying the March/April 2003 issue of the prominent bioethics journal, the Hastings Center Report.
In this report a new vision of hospice is constructed, one that holds firm to the traditions and values of the past, but finds new and more flexible organizational forms through which to express those values. The authors distill the thoughts and opinions of over 130 stakeholder representatives in end of life care, suggesting the current emphasis on categorical physical and functional eligibility be replaced by criteria related to the human consequences of serious illness. The model of traditional hospice as a specialized service and an independent agency with a limited mission will, according to True Ryndes, president of the National Hospice Work Group, "gradually be transformed into a more comprehensive model of care management in which hospice becomes the coordinating center for a range of palliative services from diagnosis to death."
This historic project was funded by the Arthur Vining Davis Foundations and Nathan Cummings Foundation and produced in association with the The National Hospice and Palliative Care Organization. Click on the toolbar at left for an Executive Summary of the project. For a hard copy of the full report contact publications@thehastingscenter.org or go to www.growthhouse.org to download the pdf version.
(Authors: Bruce Jennings, True Ryndes, Carol D'Onofrio and Mary Ann Baily)
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Guide to Selecting a Hospice
This document covers "Taking the First Step" and presents "Questions for the Hospice" where fundamental areas of importance to family members and patients are reviewed.
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Need to Find a Local Hospice?
The National Hospice and Palliative Care Organization (NHPCO) offers information about hospices in your area. Click on the "Need to Find..." headline above to access their website.
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NHWG Identifies Types of Measurement in Hospice Programs
What is the difference between an accountability measure and a performance measure? Are randomized controlled trials the only acceptable form of "research" in a hospice setting? How might care be improved through measurement? These common questions are addressed in a simple chart, clarifying the differences in data collection methods and uses.
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Innovations in End-of-Life Care
When Pain and Suffering Do Not Require a Prognosis: Working Toward Meaningful Hospital-Hospice Partnership
Diane E. Meier, MD
(Editorial)
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THE RELEVANCE OF PUBLIC HEALTH IN IMPROVING EOL CARE
Should end-of-life care be considered a public health issue? Surprisingly, the United States has done little to translate end-of-life concerns into public health mandates. A new essay by True Ryndes and Carol D'Onofrio on the relevance of public health in improving access to end of life care discusses the problems in current public health models and makes suggestions on how these models can be improved. The essay is available at:
http://www.growthhouse.org/nhwg/essay5.htm
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